Hi all, I know I know i've been a bit slack on the blog recently.

Got loads to tell you.

Most importantly according to mum and dad my last MRI scan was really good. The bleed on my brain or 'Brian' as i just spelt it, has gone! On top of that the brain damage on the otherside has gone and disappeared, it's amazing..apparently!

Anyway got mum and dad smiling which was good. My neuro guy said he'd like to rescan me when i'm 2.5yrs old which seems like eternity to me. He says that sometimes the damage can show back up when the myelin sheath grows around the nerves in the brian (all sounds like goobledeegook to me)..

Anyhow I'm feeling great, can't shake off my first cold and coughing like a small horse but otherwise nothing to complain about...well ish...

Mum keeps jamming weird coloured damp sticks of things in my hands and i plain don't like it, yes yes i grant you I do like to put most things in my mouth but what's with the damp wet slightly sgidgey things. One was like a miniature tree, nope didn't like that and their was a orange sticky thing and also a weird looking whitey yellow curved stick..nope..I'm not having it. However, mum has given me some tasty polstyrene type things..love em..not damp and tastless, just how things should be!!

As you can see from the picture above, i've taken up moutaineering, i love pouring over maps and deciding which route to pick off next...keep up parents!!!

ps isn't sitting tricky, i keep slumping off to one side, hey ho off for a wel deserved nap

Byeeeeeeeeeeeeeee

Macy moo x

I had some of the results back from my MRI scan...apparently the blood on my brain is gradually being reabsorbed into my brain, which is good & where i had brain damage it has disappeared..more detailed info coming on October 27th from my neuro consultant. I'm pleased with that anyway and mum and dad seem delighted.

I went swimming today its fun..I was wondering what happens to all my dribble that floats off into the pool?

MRI scan - 13 weeks old

Today I had my second MRI scan. Apparently I can’t lie still so they put this funny smelling mask on me and I got very sleepy. An hour later I woke up feeling really weird so I cried a bit and had a very deep husky voice for a while. Wish I could have sung a few tunes, like Macy Gray, it would’ve sounded really good but I haven’t learnt to talk yet…drat!

After an hour I forgot anything had happened so I just decided to start beaming at mummy and daddy again.

Apparently the Prof will let me know in a few weeks how my bleed and brain damage are doing…I don’t know what all the fuss is about I’m happy as larry, whoever that is.

Holidays and festivals

I’ve now been to the beach in North Devon, Cornwall and Pembrokeshire .. I’m a well travelled sandy baby. I’ve braved the English summer under canvas and from inside a youth hostel looking out at the sheets of rain. I wonder if mum and dad’ll take me somewhere where I can get out of my sleeping bag next summer!

My first festival was really amazing. I couldn’t stop looking around at all the crazy looking people and the music was lovely. I fell asleep to Roeksop and woke up for Athlete, especially when they sang ‘wires’ which makes mum and dad cry and hug me lots. I camped and aren’t some babies noisy, woke me up in the night and I’d only just got to sleep after Uncle Nath came back at 2am! My best moment was hanging out in the Tiny Tea tent which had lots of bright coloured cloth and sparkley mirrors, not too mention Chai tea which smelt great.

Week 9 - Important appointments

In short, because I’m not a tall person..yet, I had two appointments in early August with a consultant from NICU and a brain surgeon. Yes I’m very important. They were very nice and said I was doing splendidly but they’d like a look in my head to see how things are. so I'll have a brain scan in Sept.

Holidays

Macy Week 8:

I’m on holiday, it’s fantastic!

We start the holiday spending the whole day packing stuff, moving it to the car, then sitting for ages in uncomfortable seats. Finally we arrive and then we unpack everything into a new house. It’s amazing.

Best of all mum and dad are very excited so I think I’ll be excited too.

So today I went to the beach for the first time. It was really cool…literally! I got covered in sand which seems to get into every imaginable place. We set up a little tent, then surrounded it with a brightly coloured screen and then went to sleep, I love the beach it’s sort of bed but with sand.

Dad went off dressed like a penguin with a huge door looking thing..he came back later very wet and smiling. I love dad he’s really silly. Who’d think on a chilly day like this, when you could have stayed in the sand bed tent, you’d go off and jump about in the sea.

So the holiday was great it finished the same way it started lots of packing and unpacking. Just to see what’d happen I decided to try crying as loud as I could every 5 miles all the way home. It was so much fun, dad kept stopping and looking worried and mum kept looking at dad and I kept beaming at them every time they took me out of that horrible hard car seat. We had so much fun doing it all the way home. It took us so long I thought the car was home and then to my surprise we turned up back at home home. What fun.